Useful Links
The following sites contain a wealth of useful information. However, third parties over whom GenoMEL has no control maintain these sites. Therefore GenoMEL is not responsible or liable for the content, accuracy, services or other materials available from these sites.
International
The Melanoma International Foundation (MIF)
www.melanomaintl.org
MIF is a non-profit organisation dedicated to providing guidance and support for melanoma sufferers. A recent addition to the website is a series of educational ‘webinars’.
European
Euromelanoma
www.euromelanoma.org
Euromelanoma is a Europe wide campaign for skin cancer prevention.
The Melanoma Independent Community Advisory Board (M-ICAB)
www.m-icab.org
The European Cancer Patient Coalition has launched an independent, patient-led advisory board for melanoma. Their aim is to bring the perspective of cancer patients to the centre of research and treatment.
Australia
The Cancer Council Australia
www.cancer.org.au
Provides evidence-based, up-to-date information about all aspects of cancer (including melanoma) to cancer patients, the general community, doctors and other health professionals. Features include The Cancer Council Helpline, patient support programmes and resources, detailed cancer information booklets (available in several different languages), advertisement of clinical trials and other research studies, and a directory of Australian cancer services. Specific information about melanoma can be found at:http://www.cancercouncil.com.au/editorial.asp?pageid=56
Melanoma Institute Australia
melanoma.org.au
The Melanoma Institute Australia is a not-for-profit organisation dedicated to minimising the impact of melanoma through innovative research, treatment and educational programmes. Their website contains information about melanoma detection, treatment and prevention.
SunSmart Campaign
www.sunsmart.com.au
This website is dedicated to the issue of sun protection. It offers an extensive range of sun protection information booklets and brochures, available in multiple languages. It also provides information about skin cancer and sunburn, including skin damage caused by the use of solariums. These resources are particularly useful for health educators. An additional feature is the SunSmart UV Alert. The UV Alert is a daily, location-specific report on the risk of exposure to UV radiation, and is accompanied by recommendations for appropriate sun protection.
Melanoma Patients Australia
www.melanoma patients.org.au
A consumer-driven website which allows melanoma patients and their families to share their stories, and to connect with others who have had similar experiences.
The Cancer Council Queensland
www.cancerqld.org.au
The Cancer Council Queensland raises funds that are dedicated to eliminating cancer and diminishing suffering from cancer through treatment, early detection, prevention, research and patient care.
France
The French Society of Dermatology (SFD)
The FSD have resources in French for both professionals and the public.
Professionnel www.sfdermato.com
Grand public dermato-info.fr
The Netherlands
Dutch Melanoma Patient Advocacy Group
www.stichtingmelanoom.nl
The Dutch Cancer Society
www.kwf.nl
General information on melanoma
www.huidinfo.nl/melanoom.html
Site on hereditary diseases
www.erfelijkheid.nl
The United Kingdom
The British Psychological Society
http://www.bps.org.uk
The BPS lists online resources that can help someone find a psychologist.
Cancer Research UK – melanoma skin cancer
http://www.cancerhelp.org.uk/help/default.asp?page=2788
This website is aimed at both patients and the general public. It explains the symptoms and causes of melanoma, and also covers treatment options and current research.
Counselling Directory
http://www.counselling-directory.org.uk
The Counselling Directory helps people find a counsellor or psychotherapist.
EUROPAC (The European Registry of Hereditary Pancreatitis and Familial Pancreatic Cancer)
www.europac-org.eu
EUROPAC is a research study funded by the European Union and Cancer Research UK. They also provide information concerning pancreatitis and pancreatic cancer.
The Karen Clifford Skin Cancer Charity (Skcin)
http://www.skcin.org
Skcin is a charity dedicated to raising awareness of how over exposure to the sun can increase the risk of skin cancer. They also promote early detection of the disease.
Macmillan Cancer Support
www.macmillan.org.uk
Macmillan Cancer Support aims to improve the lives of people affected by cancer. They provide practical, medical, emotional and financial support. They also campaign for better cancer care.
Skin Cancer Research Fund (SCaRF)
SCaRF
SCaRF is a charity founded in 1979. SCaRF raises money for public education and medical research into skin cancer, especially melanoma.
The United States of America
Aim at Melanoma
www.aimatmelanoma.org
Aim at Melanoma is an international organization supporting melanoma research, education, and awareness.
American Cancer Society
www.cancer.org/docroot/home/index.asp?level=0
Melanoma Hope Network.org
www.melanomahopenetwork.org
This is a comprehensive North American site, aimed at providing education and direct personal support to people diagnosed with melanoma.
The National Comprehensive Cancer Network (NCCN)
The NCCN has recently produced a melanoma edition of its guidelines for patients. This ‘patient-friendly’ document is available at www.nccn.com/images/patient-guidelines/pdf/melanoma.pdf
The Siteman Cancer Centre St Louis
www.siteman.wustl.edu/internal.aspx?id=693&content=699
This website provides general skin cancer information.
The National Cancer Institute
www.cancer.gov